Collected
1.560€
To benefit
Running the Barcelona Marathon for Aina and a Cure for Angelman Syndrome
Raising funds for research to find a cure for Angelman Syndrome, inspired by my niece Aina.
Collected
1.560€
Goal
5.000€
Donations
20
Left
41 days
In support of
Cause lead by
Category
Next month, I'll be running the Barcelona Marathon to raise funds for research toward a cure for Angelman Syndrome, a rare neurological disorder that affects my niece, Aina.
Aina is joyful, loving, and full of life. She brings happiness to everyone around her. But Angelman Syndrome also brings serious challenges: it affects speech, mobility, sleep, and independence.
Despite these challenges, Aina faces every day with an incredible smile and strength.
There is hope. Scientific research is advancing, and many researchers believe that a cure is possible. But progress depends on funding.
That is why I am running this marathon: to support research that can change Aina’s life, and the lives of thousands of children and families around the world.
Every donation, no matter how small, helps move us closer to a cure.
Thanks for your support.
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Dar soporte humano e informativo, así como orientación, a todas las familias de afectados.
También a profesionales. -
Contribuir a la divulgación de los conocimientos sobre el síndrome.
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Mejorar la calidad de vida de los afectados por el Síndrome de Angelman y sus familias.
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Fomentar y financiar investigaciones sobre el síndrome.
Donators (21)
Anonymous
250€
One hour ago
Teresa C
50€
5 hours ago
Anna M
Hidden donation
8 hours ago
Carlos
10€
10 hours ago
Agnès
50€
13 hours ago
Jeff & Clara
50€
13 hours ago
Daryl Hunt
35€
13 hours ago
Anonymous
Hidden donation
14 hours ago
Lisa Brantley
50€
15 hours ago
Scott Uttenreither
35€
16 hours ago
Nuria Madrenas
50€
16 hours ago
Travis smith
50€
16 hours ago
Ruppelt
50€
18 hours ago
Juan
250€
18 hours ago
Lucia Galant
35€
18 hours ago
Glòria
20€
18 hours ago
Martina
50€
19 hours ago
Carla Fajertag
20€
19 hours ago
marta Sanz Palau
35€
20 hours ago
Oriol
250€
21 hours ago
Comments (8)
Agnès
Visca !!
Juan
Iaios de Aina
Lucia Galant
Bravo Uri!!!!
Glòria
Gloria Consola
Martina
🙏🏻✨
Carla Fajertag
❤️